The Drs explained to Cindy that Kylie has Gorlin Syndrome. Basically it sounds like this is going to be a lifelong battle for her. Cindy said the Drs spoke with her about a 5 year life span expectancy and her response was that God is in control and her baby is a fighter. Please keep this sweet girl in your thoughts and prayers! Her last radiation treatment is on the 10th. She will then have her first round of chemo there before coming home, but we still do not have that date yet. Please keep Kylie and Cindy in your prayers!!!
many of you have heard of our sweet Kylie who is currently in the United States and just had a brain tumor removed. Unfortunately, the tumor was malignant and as a result she needs to undergo radiation as well. She is currently out of the hospital and staying with her mom in order to rest for two weeks before starting radiation on March 4th. Now that Kylie is at the home with Cindy, she is responsible for diapers, formula, etc. She is also having problems getting her shirts on with her head the way it is, so she needs some larger tops. We sent some money with Cindy that was raised but it was very minimal for 2 months of being in the states and now it will be 3 months.
If you're interested message me and I can give you clothing sizes and or a mailing address to send them to :) jjoyce04044@yahoo.com
Diapers-Size 5
PediaSure (Vanilla only) picky little bug :) (This is what the hospital has her on because she is not tolerating regular formula or milk)
Size 4t shirts (long sleeve)
No comments:
Post a Comment